News
This page will be updated with information relating to palliative and end of life care for people with a learning disability. Please send us any news items you would like us to include here.
A Message from the PCPLD Network Chair
Dear all, I am very sorry to have to inform you that from 28 February 2023, I have made the decision to step down from my duties as Chair and Trustee at PCPLD Network. The decision has been an extremely difficult one for me to make but I will continue to support and...
Covid deaths and people with learning disabilities: response from the PCPLD Network
New joint guidance from the PCPLD Network and NHS England
The PCPLD Network has worked in partnership with NHS England to produce a guide (published August 2017) titled Delivering high quality end of life care for people with a learning disability. Resources and tips for commissioners, service providers and health and...
January 2018 Newsletter
Summer 2017 Newsletter
February 2017 Newsletter
PCPLD Network December 2016 Newsletter
AGM 2016 Minutes
PCPLD NETWORK – The Future
PCPLD Network August 2016 Newsletter
PCPLD Network June 2016 Newsletter
PCPLD Network April 2016 Newsletter
Margaret (Peggy) Fray Obituary
It is with great sadness that we learned of the death of Peggy Fray on 24th April 2014 at the age of ninety. Born in 1923, she was the older sister to Kathleen – who arrived just one week before her fourth birthday and was born with Down’s syndrome. In June 1943, at...
European Association for Palliative Care White Paper
European Association for Palliative Care White Paper now available online, click here to read.
New national Emergency Care and Treatment Plan consultation
The public consultation for the new national Emergency Care and Treatment Plan started recently. The UK-wide ECTP will go some way to addressing the issues of premature deaths and poor decision-making that many have highlighted for over a decade. The public...
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Sorting out Patrick’s care
Mark Adams, a Community Learning Disability Nurse, shares his experiences with one of his clients.Patrick Simmons (not his real name) had moderate learning disabilities and lived on his own. Patrick had no family, and relied greatly on professional supporters and a...
Keeping Frank at home
When Frank was diagnosed with lung cancer, Macmillan Nurse Christine Reddall was called to his care home to offer support. She was impressed by how home manager Lisa Quinlan and her team managed to care for him. Here, she tells Frank’s story: an example of outstanding...