At six months old, Victoria was diagnosed with Tuberous Sclerosis. This affected her brain, skin, and later her kidneys. She had profound physical and learning disabilities, scoliosis, uncontrolled epilepsy, and behaviour which could challenge. She communicated with...
Dear all, I am very sorry to have to inform you that from 28 February 2023, I have made the decision to step down from my duties as Chair and Trustee at PCPLD Network. The decision has been an extremely difficult one for me to make but I will continue to support and...
The PCPLD Network has worked in partnership with NHS England to produce a guide (published August 2017) titled Delivering high quality end of life care for people with a learning disability. Resources and tips for commissioners, service providers and health and...
